Tuesday evening, 4/19

Dinky is continuing to hang in there with this latest bump. His x-rays are improving (they are following the air in his bowels) and in general he's been doing pretty well. They are again concerned about his blood pressure which has been on the high side since his surgery. If it was directly related to the PDA surgery it should have resolved by now (it's been one week since his surgery) so we'll watch that.

I wish I could accurately describe just how sweet this child is. I sat by his bed last night and spent a lot of time just holding hands with him and staring at him. He really is incredible. He can cry like any baby can cry (albeit without sound) yet he rarely does. Even when he is getting poked and proded you can almost see him trying to keep a stiff upper lip as he cries just the tiniest bit. It breaks my heart just to write about it. He is really something. (That last sentence was typed after just staring at this screen for a while trying to come up with the right words to communicate what I am trying to say. There are no right words, only this feeling, and I am so lucky to feel it.)