Sunday, 7/31

Just a quick update since I didn't get to it yesterday. In general we've had a pretty good weekend. We hit a small snag yesterday when Dinky's G/J tube (feeding tube) got clogged again and we had to go back to interventional radiology. It was a minor bump but frustrating in that it had just been replaced 8 days earlier. The formula he's on and some of the medications he's on are a little thicker so they think that's why it's clogging. Hopefully he'll keep this one for a while.

So, not much to report. We're hoping to have a family meeting with the neonatologist and our surgeon this week to really start talking about the big picture, going home, etc. The main question is how he'll be fed once we go home (g-tube (stomach) v. j-tube (intestine.) So hopefully we'll get more information.