Friday, 7/21

Yesterday we had a minor setback but it was all resolved by today. First a "refresher"....
Dinky's feeding tube is called a G/J (stomach/intestine). He is fed through the J part so that he won't reflux which is what caused him to stop breathing last month. His G, which is supposed to be in his stomach, is actually in his duodenum (also intestine) and basically isn't doing anything right now.

So...yesterday at about 5 pm his J tube became completely clogged. They tried for almost 2 hours to "flush" it out by inserting sterile water and taking it out, over and over again. Unfortunately this caused just excrutiating pain for him we think because it just irritated his intestine. So, they had to stop all of his feeds and put in an IV. Needless to say our little camper was not very happy. So Martin and I stayed with him last night to give him lots of TLC. Today they replaced his tube and even managed to get the "G" part back in his stomach where it belongs. So by the time we left he was "eating" again and fast asleep. All is well in Dinkyland.

The bright spot in all of this is that last night there were times that he was screaming, I mean screaming in pain. And while this was truly unbearable we were encouraged that he didn't have any "spells" which means his airway is healing. That's a great sign! Dinky handled all of this much better than his mom did and even managed a few of this heart melting smiles this morning. He is really something.