Monday, 7/25

Dinky and I had a great day...until about 5 o'clock. That seems to be his fussy, gassy time. But earlier in the day he was just all smiles for almost an hour. We had such a good time. The nurse kept saying, "What are you two doing over there?" The good news is that when he was fussy he didn't have any of his "spells" even though his oxygen has been turned down! Yay! He's now on 2L of regular oxygen. He was on this for a few days before he started having the "blue spells" so hopefully the last 3 weeks have given his trachea some time to heal. In the meantime I'll just be on my usual pins and needles which is probably where I'll be for the next 18 years!