Wednesday, 5/11

We were warned early on that this whole experience would be a roller coaster. Today has been that roller coaster all packed into one.

This morning Dinky went down to fluoroscopy for a study. Somehow, as they were transporting him back to his bed, he extubated himself meaning he knocked out the tube that's connected to the ventilator. While he was extubated they decided to give him a shot to see what he could do. For four hours I got to stare at my beautiful baby, tubeless, and watch him breathe on his own (with some supplemental oxygen). It was amazing. He was doing so well! Unfortunately after about four hours he got upset about something and started crying...harder and harder. Sometimes when babies do this they "clamp down" (it's like they bear down and hold their breath) and so his heartrate and oxygen rate dropped down. Way down. I can't even describe how scary this experience was. It lasted minutes but felt like hours. They called the doctors in and they had to "bag" him and then reintubate him. They're just not sure what it is that makes him get into trouble. He did do so much better than last time so that's a good sign, he just isn't ready.

As my mom mentioned our computer at home is down but I will do my best to keep you all updated.