Thursday, 6/16

We had such a great day with Dinky today. While we love days like today they also make us nervous. We've gotten too accustomed to the bottom falling out once we get on a roll. I'm trying to live in the moment and just relish our day today. We held Dinky for about 4 hours this afternoon and he rested so comfortably. He really is a snuggle bunny. He continued to be very expressive with his raised eyebrows, my mom said he takes after his Uncle David when he was a baby. All in all it was a great day.

Tomorrow the surgeon is going to dilate his esophagus at the bedside which is a little nerve racking. You may have noticed in the pictures we posted that there is a string in his mouth. Yes, a string. That string goes in his mouth, down his esophagus, and out his g-tube site. Tomorrow they will connect the dilater tubing onto the end of the string and pull it through his esophagus. I'm nervous about this because it doesn't sound pleasant and I know he's going to protest. I'm still anxious about whenever he gets really upset that his airway will collapse. I know there will be good doctors around so hopefully it will go off without a hitch.

I have to take a moment to say thank you to so many of you. My guilt is starting to get the better of me. So many of you have done such special things for us and every day I intend to sit down and write proper thank you notes. Now I'll never catch up!! Just please know that every gesture has just meant the world to us and has helped us get through the first leg of this journey called parenthood :) Thank you, thank you, thank you!!!