Saturday, 6/11

A pretty quiet day today. They were planning to take out the breathing tube but things were very busy so they didn't do it. I think the doctor wanted to be sure to have plenty of time to focus on Dinky (understandably) and because he was covering the whole unit could not do so. He's not there tomorrow so the plan will be to try on Monday. If he is extubated successfully they will hold off on the bronch assuming that that means his airway is still okay. If he's not extubated successfully this will point more towards the aortopexy having failed and so then they will do a bronch. We'll just have to wait and see.

Unfortunately the waiting is hardest on our little man. He is so frustrated to have that tube again. When he's intubated you can't hear him make sound and you can tell this is frustrating to him as well. He'll start crying and when he doesn't hear anything he starts crying even harder. The crying without sound is definitely harder to watch.

On the bright side they did start feeding him again so hopefully we can start working on him gaining weight. It was shocking today when a new baby was admitted that looked so tiny. The nurse asked if I remembered when Dinky was that small and I said that Dinky was never that small. But it turns out that baby weighs 300 grams more than Dinky did at birth. That definitely put things into perspective. He's come a long way, baby.