Sunday, 6/12

Today was a so-so day for our little man. From a respiratory standpoint he did really well with his vapotherm oxygen and seemed very comfortable. He had a most impressive chest x-ray this morning :) However, other things didn't go so well. They inadvertently weaned his morphine...a lot. They switched from an IV dose to a g-tube dose (IV is much stronger) and they decreased the number of times he gets it per day. It was accidental but unfortunately no one caught it until he went into pretty bad withdrawal. They have a scale that measures "wean scores" which is based on things like being jittery, breathing quickly, yawning, etc. Normally his wean scores are about a 2 and today it was 10!! Poor little thing just got so miserable as the day went on. During the course of his being so uncomfortable he completely rolled over! It was nice to see that he has that much strength but unfortunate that it came out of pain. By the time I left tonight he finally seemed to be a little more comfortable.

The only other issue we're having is with his g-tube. On Saturday they went up on the size and it's irritating his skin and his stomach. So we'll be watching that.

We had a nice visit with David and Katy today. When Katy was in there with me Dinky had a huge throw up. It's the most he's had and it threw me for a loop. Katy, being the seasoned mom that she is, took it all in stride :)