Tuesday, 3/8
When I went to the hospital today it was 50 degrees. When I came home it was 20 degrees and snowy. Unfortunately Dinky's day had the same highs and lows. The highs: the move went well and he seems settled into his new home. Today he also got to meet his Uncle David and Aunt Katy for the first time. That was the highlight of the day! The lows: everyone is pretty concerned about Dinky. His swelling has gotten a little worse and we still don't fully know the cause. The doctors are all putting their heads together trying to determine exactly what could be going on. His respiratory status was also unstable today. He had more episodes of brady and desats than he has recently. They are making some adjustments to the tube in his mouth and the ventilator to hopefully stabilize this. We also found out today that part of his diaphragm is paralyzed. Somehow the nerve that controls the diaphragm got damaged so the right side of his diaphragm doesn't move in unison with the left. We are not really sure how this will impact things long term. The doctor doesn't feel like it's a critical issue at this time. This is such a scary time and that little boy never ceases to amaze us with his strength.
posted by Jen @ 8:37 PM
2 Comments:
Strength... wow, that is not a word you would normally associate with a person (yup, that little guy is a person) who weighs less than 3 lbs. Well, take a look at his life--- all 4 weeks of it. He has hurt, fought, been poked, stuck, suffered, struggled, been moved around and had to look at dozens of folks dressed in funny looking outfits for his entire life. And yet, he is here, he has persevered, and he is so loved by his Mom and Dad, so many of his caretakers, his family and his loved ones. He has strength... have no doubt about it.
Spunky, keep it up!
Pa
I'm glad Dinky is all settled in his new room now. Maybe today's events could have been brought on by the anxiety of the move? We tend to forget that little people can sense things that we don't think they are aware of...my other theory is that he is retaining more water in an attempt to bulk up and look buff for all the ladies in the new wing. See, he's a heart throb already!
Love to all, Sue, Charlie & the babies
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