Tuesday, 3/1
Well, it was another eventful day in Dinkyland. Today he went on a field trip. They were having a really hard time placing an IV, and he kept losing the ones they placed, so he went to interventional radiology so the doctors there could put one in using ultrasounds and fluroscopy lights. It's very unusual for babies to leave the NICU so it was quite a production. It took 4-5 people (including the doctor) to transport him down there. They were able to place a line in his groin. This will help a lot in terms of administering his medications since he lost the PICC line in his head. This will also give his little veins time to heal from where he has had so many temporary, peripheral IVs.
Unfortunately while doing an echocardiogram today they did determine that his PDA, the heart valve, is still open. Unfortunately this is after 2 rounds of Indocin. It's looking like the likelihood of its closing with indocin is getting slim. We will have to talk about treatment options a little later on but it may mean another surgery.
The nurses who had him today were all commenting on his bravery. He has won over many hearts in that NICU.
posted by Jen @ 8:58 PM
3 Comments:
It sounds like you all have found yourselves an extended family in the NICU staff. I hope they are taking good care of you throughout all of this.
All our love & kisses,
Sue,Charlie & the boys
"Lullaby for Spunky"
"When the stars up high all blink,
They are shining for our "Dink"...y
They all know how brave he is each night he sleeps.
When the sun shines down all day,
"Ole Sol" is simply trying to say,
I'm warming up your heart to stay the fight for keeps.
So open up your bright eyes,
Look about and realize,
There's a world of loving folks all around.
Your Mom and Dad will be so proud,
When you can cry and poop out loud,
But for now your working hard to hold your ground.
Sleep sweet, sleep strong, have dreams of stars and sun.
Sleep sweet, sleep long, dream of the life that you have won."
Love you Spunky, soon I'll sing this lullaby to you in person.
Pa
"Lullaby for Spunky"
"When the stars up high all blink,
They are shining for our "Dink"...y
They all know how brave he is each night he sleeps.
When the sun shines down all day,
"Ole Sol" is simply trying to say,
I'm warming up your heart to stay the fight for keeps.
So open up your bright eyes,
Look about and realize,
There's a world of loving folks all around.
Your Mom and Dad will be so proud,
When you can cry and poop out loud,
But for now your working hard to hold your ground.
Sleep sweet, sleep strong, have dreams of stars and sun.
Sleep sweet, sleep long, dream of the life that you have won."
Love you Spunky, soon I'll sing this lullaby to you in person.
Pa
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