Friday, 5/27

Thank you all so much for your support yesterday. You all mean so much to us. I am happy to report that today was a better day. They did have to retape Dinky's breathing tube again but prior to doing so they gave him a hefty dose of morphine to keep him calm. It seemed to do the trick. I spoke briefly with one of the surgery fellows who said that they will do a "bronch" on Wednesday and one on Thursday. The one on Wednesday, a flexible bronch, will be done at this bedside. The one on Thursday, a rigid bronch, will be in the OR like the one he had a few weeks back. After that we will find out their plan to fix his airway. Martin and I have been researching the 2 options, aortopexy and tracheostomy, so we can be prepared when we meet with the surgeon. It's a scary but necessary next step. Thank you, thank you, thank you again for all of your prayers and positive energy. We feel you.