Thursday, 3/17

Happy St. Patrick's Day! Things were quiet on the Dinky front. He continues to have his "spells" but he didn't have to get "bagged" today. Usually they just had to give him a little more oxygen and he did better. They are still increasing his feedings!! He's up to 11.5! He is out eating what I can make for him so he'll probably get his first taste of formula tomorrow. I am trying desperately to catch up to him.

They may switch him back to the "conventional" ventilator tomorrow. He's been on the high oscillating "jet" ventilator for 2 weeks now. The current doctor feels this will be a good move in terms of continuing to try and wean him. We'll see how Dinky does. His CRP number is down to 1.5 today which is great! So, we feel like we're in the clear in terms of infection....for now.

The plan is for us to meet w/ the surgeon on Tuesday just to go over our long term game plan in terms of when he'll go back to surgery. This would be the surgery to connect his esophagus to his stomach (and "tuck" down his diaphragm if that nerve doesn't regenerate). We'll be anxious to hear what where they want Dinky to be before they feel comfortable operating. We have such a long way to go but look how far we've come....