Tuesday, 9/13
We are on the fast track. Dinky continues to shine and with each step we get a little closer to home. It looks like he'll be home in a 1-1/2 to 2 weeks. I am feeling a little less terrified...now I'm just scared :) It will be fine. I think they will make sure we're well prepared by the time we get home. Today Martin and I took a class on infant CPR and then we'll take a class on caring for his g-tube. Not the baby care classes we were anticipating many many months ago.
We met with our surgeon today just to get an idea of the overall plan. Early next week they will do a swallowing study that will determine if Edison can take even the smallest amount by mouth. That will be exciting. We'll meet with our surgeon once a month after we go home. I'm glad he'll be following us so closely...he is definitely a comforting presence to me and we trust him completely. He knows Dinky inside out...so to speak.
I think I will plan to close the blog the day Dinky comes home. I have a feeling he won't give me too much time to gather my thoughts :) So we may be entering the final chapter. I cannot tell you the strength we have gathered from your comments and just knowing you're out there.
***Just in case you didn't see my friend Sue's comment, please keep her mom in your thoughts and prayers. She took quite a spill at home and is in the hospital recovering***
posted by Jen @ 8:51 PM
2 Comments:
Wow! I can't believe that Edison is on his way home. That is such FANTASTIC news. This has been a long time coming, and I am so happy for you, Jen and Martin!
Thanks for everyone's thoughts and prayers for my mom. They must be working since she looked so much better when I saw her last night! She will be in the hospital until Friday, but she has already gotten her fancy new customized back brace. The doctor is hoping her back will heal without surgery, so keep those good wishes coming and thanks so much!!
Hillary Clinton wrote, "it takes a village to raise a child." Jennifer has written here, "it takes a community to HAVE a child."
A community has been created---starting at RWJ, extending to CHOP, then you, and you and you. Family, friends, friends of friends, doctors, nurses, aides... and even a few strangers along the way. We have all shared the ups and downs of Dinky's life. We have cried together, feared together, hoped together, prayed together, and more recently laughed out loud together. Now we can rejoice together. Dinky is going home!!!
We are a truly a community.
We love you all.
Ma and Pa
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