Dinky
Edison, "Dinky", was born on 2/4 at 11:50 pm via c-section. He was born at 29 weeks 5 days. At birth he was diagnosed with a traceoesophageal fistula (TEF) and an esophageal atresia. He had surgery on 2/5 to correct the fistula and will have another surgery in a few months for the atresia. He is currently on ventilator support in the NICU where he will be until sometime in Spring. This blog will be used to update family/friends who have been so supportive of us. We cannot thank you enough for all of your prayers, calls, cards, flowers and support. We will try and post a daily update on his status. Here is an update of what has happened so far:
2/4: born
2/5: surgery to repair fistula and to place g-tube
2/6: unstable from a respiratory standpoint after surgery. Severe case of respiratory distress syndrome. Possible pulmonary hemorrhage. Placed on oscillating ventilator which provides shorter, faster breaths.
2/7: placed back on regular ventilator, ultrasound of head is normal which is a big relief.
2/9: Jen comes home.
2/10: chest tube taken out, PICC line placed in temporal vein, he will received medicine through this which means he won't have to be "poked" every time.
2/11: Happy 1-week birthday!! They tried to feed him today but he didn't tolerate it :( We will try again either Saturday or Sunday. They are attempting to wean the ventilator which is happening slowly. When they try he has episodes of "brady" (bradycardia) where is heart rate drops. We will keep trying slowly. Talk with doctor today who reports they are please with where he is at this point while reminding us that he is still "fragile". His RDS (respiratory distress syndrome) seems to be resolving somewhat.
4 Comments:
Great idea Jen! Congratulations and God Bless. You're all in our prayers and we can't wait for you all to be together at home.
Brian
Hey, I just noticed that if you say babyreuf.blogspot.com outload, it sounds a lot like BabyRuth. ;-)
Love to the three of you. Please excuse me if I call the wee one Dinky. That's who he's been in my mind for such a long time, and I think it's just right for our wee one. love...
Dinky! I love you, honey! I can't wait to see you!
Jen and Martin, you are constantly on my mind. I love you both so much and am so inspired by each of you. See you soon,
Shan
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